Yubaedi Siron, Hana Sausan Ningrum, Lingga Gustiani, Fauziah Muaz


Cerebral palsy children need special treatment from their parents. The optimal caring from father has a significant influence on the development of children with cerebral palsy. This study aims to explore the role of fathers in caring for children with cerebral palsy. This research uses a qualitative approach. This study uses semi-structured interviews with fathers who have children with cerebral palsy. The results of this study found that fathers play an active role in childcare. Fathers help build good relationships with children by inviting them to play, sing, and read a child's favourite storybook. Even though he is busy at work, the father always tries to fulfil the children's needs such as bathing, eating, giving medication, changing diapers and routine therapy. Each participant in this study had their parenting challenges. Although sometimes the participants feel unwilling to do therapy on children, what makes them enthusiastic is their high expectations.


cerebral palsy; paternal involvement; parenting

Full Text:



Aisyah, D. S., Riana, N., & Putri, F. E. (2019). Peran Ayah (Fathering) dalam Perkembangan Sosial Anak Usia Dini (Studi Kasus pada Anak Usia 5-6 tahun di RA Nurhalim Tahun Pelajaran 2018). Jurnal Wahana Karay Ilmiah_Pascasarjana (S2) PAI Unsika, 3(1), 294–304.

Allen, S., & Daly, K. (2007). The Effects of Father Involvement: An Updated Research Summary of the Evidence. Guelph: Centre for Families, Work & Well-Being, University of Guelph. http://doi.org/10.1080/15295190709336777

Anindita, A. R., & Apsari, N. C. (2020). Pelaksanaan Support Group Pada Orangtua Anak Dengan Cerebral Palsy. Focus: Jurnal Pekerjaan Sosial, 2(2), 208. http://doi.org/10.24198/focus.v2i2.26248

Appl, D. J., Brown, S., & Stone, M. (2008). A father’s interactions with his toddler: Personal and professional lessons for early childhood educators. Early Childhood Education Journal, 36(2), 127–134. http://doi.org/10.1007/s10643-008-0263-2

Astuti, V., & Masykur, A. M. (2015). Pengalaman Keterlibatan Ayah Dalam Pengasuhan Anak (Studi Kualitatif Fenomenologis). Jurnal Empati, 4(2), 65–70.

Cabrera, N. J., Tamis-LeMonda, C. S., Bradley, R. H., Hofferth, S., & Lamb, M. E. (2000). Fatherhood in the twenty-first century. Child Development, 71(1), 127–136. http://doi.org/10.1111/1467-8624.00126

Crespi, I., & Ruspini, E. (2015). Transition to fatherhood: New perspectives in the global context of changing men’s identities. International Review of Sociology, 25(3), 353–358.

Diadha, R. (2015). Keterlibatan Orangtua dalam Pendidikan Anak Usia Dini di Taman Kanak-Kanak. Edusentris, Jurnal Ilmu Pendidikan Dan Pengajaran, 2(1).

Dwairy, M. (2009). Parental Acceptance Rejection: A Fourth Cross-Cultural Research On Parenting And Psychological Adjustment Of Children. Journal of Child and Family Studies, 19(1), 30–35.

Dyches, T. T., & Smith, T. B. (2017). Positive Parenting of Children with Developmental Disabilities : A Meta-Analysis.

Eliyanto, H., & Hendriani, W. (2013). Hubungan Kecerdasan Emosi dengan Penerimaan Ibu Terhadap Anak Kandung yang Mengalami Cerebral Palsy. Jurnal Psikologi Pendidikan Dan Perkembangan, 2(2), 124–130.

Erawati, M. (2009a). Kajian metaanalisis 3 keterlibatan ayah dalam pengasuhan dan externalizing behavior pada anak. Indigenous, Jurnal Ilmiah Berkala Psikologi, 11(1), 2–19.

Erawati, M. (2009b). Model keterlibatan ayah dalam pengasuhan. Mudarrisa Jurnal Kajian Pendidikan Islam, 1(1).

Fernández-García, C.-M., Rodríguez-Menéndez, C., & Peña-Calvo, J.-V. (2017). Parental control in interpersonal acceptance-rejection theory: a study with a Spanish sample using Parents’ Version of Parental Acceptation-Rejection/Control Questionnaire. Anales de Psicología, 33(3), 652. http://doi.org/10.6018/analesps.33.3.260591

Filus, A., & Roszak, J. (2014). Relationships Between Parental Power, Prestige, and Acceptance, and the Psychological Adjustment of Young Adults in Poland. Cross-Cultural Research, 48(3), 286–294. http://doi.org/10.1177/1069397114528458

Frank, T. J., Keown, L. J., & Sanders, M. R. (2014). Enhancing Father Engagement and Interparental Teamwork in an Evidence-Based Parenting Intervention: A Randomized-Controlled Trial of Outcomes and Processes. Behavior Therapy, 46(6), 749–763. http://doi.org/10.1016/j.beth.2015.05.008

Hidayati, F., Kaloeti, D. V. S., & Karyono. (2011). Peran Ayah Dalam Pengasuhan Anak. Jurnal PSikologi Undip, 9(1), 1–10. http://doi.org/10.26486/psikologi.v17i2.687

Hill, N. E., & Craft, S. A. (2003). Parent-School Involvement And School Performance: Mediated Pathways Among Socioeconomically Comparable African American And Euro-American Families. Journal of Educational Psychology, 96, 74–83.

Hu, B. Y. (2010). Training needs for implementing early childhood inclusion in China. International Journal of Early Childhood Special Education, 2(1), 12–30. http://doi.org/10.20489/intjecse.107955

Ikasari, A., & Kristiana, I. F. (2017). Hubungan antara Regulasi Emosi dengan Stres Pengasuhan Ibu yang Memiliki Anak Cerebral Palsy. Jurnal Empati, 6(4), 323–328.

Jeong, H. M., & Kim, H. Y. (2016). Factors Influencing Parental Satisfaction of Mothers with Preschool Children. Korean Journal of Women Health Nursing, 22(3), 117. http://doi.org/10.4069/kjwhn.2016.22.3.117

Keown, L. J., & Palmer, M. (2014). Comparisons between paternal and maternal involvement with sons: Early to middle childhood. Early Child Development and Care, 184(1), 99–117. http://doi.org/10.1080/03004430.2013.773510

Kleemans, T., Peeters, M., Segers, E., & Verhoeven, L. (2012). Child and home predictors of early numeracy skills in kindergarten. Early Childhood Research Quarterly. http://doi.org/10.1016/j.ecresq.2011.12.004

Li, L., & Fleer, M. (2015). Family pedagogy: parent–child interaction in shared book reading. Early Child Development and Care, 185(11–12), 1944–1960. http://doi.org/10.1080/03004430.2015.1028398

Lindsay, S., Proulx, M., Scott, H., & Thomson, N. (2014). Exploring teachers’ strategies for including children with autism spectrum disorder in mainstream classrooms. International Journal of Inclusive Education, 18(2), 101–122. http://doi.org/10.1080/13603116.2012.758320

Machado, M., Machado, F., Neves, S., & Fávero, M. (2014). How Do Parental Acceptance–Rejection, Power, and Prestige Affect Psychological Adjustment? A Quantitative Study With a Sample of Portuguese College Students. Cross-Cultural Research, 48(3), 295–304. http://doi.org/10.1177/1069397114528459

McFarland-Piazza, L., & Saunders, R. (2012). Hands-on parent support in positive guidance: early childhood professionals as mentors. Australasian Journal of Early Childhood, 37(1), 65–73.

Mcintyre, L. L., & Phaneuf, L. K. (2017). A Three-Tier Model of Parent Education in Early Childhood Applying a Problem-Solving Model. Topics in Early Childhood Special Education, 27(4), 214–222.

Megalonidou, C. (2020). The quality of early childhood education and care services in Greece. International Journal of Child Care and Education Policy, 14(1). http://doi.org/10.1186/s40723-020-00074-2

Meiza, A., Kardinah, N., Rahman, A. A., & Puspasari, D. (2019). Quantitative Profile of Family Acceptance of Children Special Need’s Moslem Parents (Case Study at Rumah Terapi Aura). American Journal of Family Therapy, 47(4), 232–243. http://doi.org/10.1080/01926187.2019.1635540

Miles, M. B., & Huberman, M. a. (1994). Qualitative data analysis: An expanded sourcebook. Evaluation and Program Planning. http://doi.org/10.1016/0149-7189(96)88232-2

Moss, P. (2012). Caring and Learning Together: Exploring the relationship between parental leave and early childhood education and care. European Journal of Education, 47(4), 482–493. http://doi.org/10.1111/ejed.12003

Parmanti, & Purnamasari, S. E. (2015). Peran Ayah dalam Pengasuhan Anak. Jurnal InSight, 17(2), 81–90.

Paul, S. A. S., Hart, P., Augustin, L., Clarke, P. J., & Pike, M. (2020). Parents’ perspectives on home-based character education activities. Journal of Family Studies, 0(0), 1–23. http://doi.org/10.1080/13229400.2020.1806097

Pradipta, R. F., & Andajani, S. J. (2017). Motion Development Program for Parents of Child with Cerebral Palsy. Jurnal Penelitian Dan Pengembangan Pendidikan Luar Biasa, 4(2), 160–164.

Prasastiwi, B. H., & Hardjanta, G. (2017). Penerimaan Diri Orangtua yang mempunyai Anak Cerebral Palsy. Jurnal Pemikiran Dan Penelitian Psikologi, 12(2), 100–107.

Puspitarini, Z. (2017). Hubungan antara Pengalaman Orang Tua dalam Perawatan Kualitas Hidup Anak Cerebral Palsy di Yogyakarta Tahun 2016. Jurnal Keperawatan Respati Yogyakarta, 4(1), 112–117.

Putnick, D. L., Bornstein, M. H., Lansford, J. E., Chang, L., Deater-Deckard, K., Di Giunta, L., … Bombi, A. S. (2012). Agreement in Mother and Father Acceptance-Rejection, Warmth, and Hostility/Rejection/ Neglect of Children Across Nine Countries. Cross-Cultural Research, 46(3), 191–223. http://doi.org/10.1177/1069397112440931

Rohner, R. P. (2014). Parental Power and Prestige Moderate the Relationship Between Perceived Parental Acceptance and Offspring’s Psychological Adjustment: Introduction to the International Father Acceptance–Rejection Project. Cross-Cultural Research, 48(3), 197–213. http://doi.org/10.1177/1069397114528295

Rosenbaum P, Paneth N, Leviton A, et al. (2007). A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl, 49(6), 480.

Rovasita, S. (2017). Sharing Experience dan Resiliensi: Studi atas Facebook Group Orang Tua Anak Cerebral Palsy. Inklusi: Journal of Disability Studies, 4(1), 119. http://doi.org/10.14421/ijds.040106

Sakdiyah, H. (2012). Penerimaan Orang Tua yang Memiliki Anak Penyandang Cerebral Palsy (Sebuah Studi Kasus). IAIN Surabaya.

Septiningsih, D. H. N., & Cahyanti, I. Y. (2014). Psychological Well-being Ayah Tunggal Dengan Anak Penderita Cerebral Palsy. Jurnal Psikologi Klinis Dan Kesehatan Mental, 3(1), 50–58.

Siron, Y. (2019). Keterlibatan Orang Tua, Regulasi Diri, Agresivitas Mempengaruhi Perilaku Toleran Anak: Path Analysis. Awlady: Jurnal Pendidikan Anak, 5(1), 126–149. http://doi.org/10.24235/awlady.v5i1.3698

Siron, Y., Perdana, V. R., Saputri, S. R., & Hanifah, D. N. (2020). Bagaimana Menjadi Orang Tua Anak dengan Cerebral Palsy? A Parent Acceptance (How to be Parent of Children with Cerebral Palsy ? A Parent Acceptance). Atfaluna: Journal of Islamic Early Childhood Education, 3(2), 90–104.

Varan, A., Rohner, R. P., & Eryuksel, G. (2008). Intimate partner acceptance, parental acceptance in childhood, and psychological adjustment among American adults in ongoing attachment relationships. Cross-Cultural Research, 42(1), 13–22. http://doi.org/10.1177/1069397107309750

Whittingham, K., Sanders, M., McKinlay, L., & Boyd, R. N. (2013). Stepping Stones Triple P and Acceptance and Commitment Therapy for Parents of Children with Cerebral Palsy: Trial Protocol. Brain Impairment, 14(2), 270–280. http://doi.org/10.1017/BrImp.2013.19

WHO. (2013). Birth Defects in South-East Asia A Public Health Challenge. Regional Office for South-East-Asia.

Yuliyati. (2014). Model budaya baca-tulis berbasis balance literacy dan gerakan informasi literasi di SD. Jurnal Ilmu Pendidikan, 20(1), 117–126.

DOI: https://doi.org/10.15408/jece.v2i2.18745 Abstract - 0 PDF - 0


  • There are currently no refbacks.

Indexed by:

CrossRef CrossRef Garuda dimension sinta


Creative Commons License

© Copyright CC-BY-SA

web analytics View My Stats

JECE, p-ISSN: 2686-2492 e-ISSN: 2715-8918